Help fund INAD medical research.
Infantile Neuroaxonal Dystrophy is a rare inherited disorder. Children have a life expectancy of 5-10 years, please help us to fund urgent research to find a cure.
Grant paid to Bloomsbury Genetic Therapies
Cure INAD UK recently paid a £17,000 grant to Bloomsbury Genetic Therapies.
The grant will go towards their INAD research with UCL, for a dose finding study of BGT-INAD in pla2g6-inad mice as part of their gene therapy research.
Thank you to all our fundraisers and everyone who has donated and supported us!
Movement for Good is an annual programme of giving by the Benefact Group. This year they are awarding charities £1000.
To be in the draw and to increase our chances of winning £1000 we need as many nominations as we can get. Please spare a minute and nominate us.
We’re continuing to raise funds and spread awareness of INAD. If your place of business participates in charitable giving, please consider donating to Cure INAD UK. We are grateful for every donation received.
If you would like to organise a fundraiser we are registered with JustGiving and Gift Aid. Please get in touch if you are interested.
“INAD is a progressive, inherited, neurodegenerative condition affecting young infants and children. Children with this life-limiting condition often appear to be developing normally initially but over time, they progressively lose the ability to walk, talk, speak, eat independently, and move. There is no proven specific treatments for this condition yet. However, research (including a number of precision medicine approaches) is making good progress, providing hope for families affected by this devastating condition.”
— Dr Audrey Soo, Paediatric Neurology Clinical Researcher working on INAD.
Read the stories of children with INAD
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